Видео с ютуба Rare Diseases Database
How DNA Databases Can Help Diagnose Rare Diseases
From Data To Cures: Speeding The Way For Rare Diseases
How Does Data Sharing Improve the Understanding of Rare Diseases?
What You Need to Know About the Rare Disease Cures Accelerator-Data and Analytics Platform
Rare Diseases Aggregated Data Bases to Inform Drug Development Research
Webinar | Locus-Specific Patient Databases for Rare Disease: A Computational Approach
S4R Webinar: FAIRness of Data in Rare Diseases
Rare Disease Genetics: Unlocking Insights for All
Rare Disease Research with All of Us
Repurposing drugs for rare disease (a LinkAGE webinar)
NORD's Next Generation of Rare Disease Advocates: Ian Brown
2022 Rare Disease Week - How Data Can Power Rare Disease Advocacy
Rare Disease Registry: Using the Data
10 Things You May Not Know About Rare Diseases
Rare Diseases are Not Rare – A Training on Rare Disease Resources
The Role of Integrated Datasets in Addressing Rare Diseases Research Challenges
Diagnosis for All Rare Genetic Diseases | Center for Individualized Medicine Grand Rounds
Call for patients and members of their families - Rare Diseases Database
Midsummer Nights' Science: Using big data to understand rare diseases (2016)
Accelerating Drug Development for Rare Diseases through Data Sharing and Analysis
Call for public - Rare Diseases Database
The diagnostic odyssey of a rare genetic disease | Dina Zielinski | TEDxCluj
Justin's Odyssey: A journey in rare disease data sharing
Every EXTREMELY Rare Disease Explained In 20 Minutes
Sharing Data With RDCA-DAP: Your Questions Answered